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Papers

I don’t look at these. They are in my bedroom. I don’t know what they are for. I’m happy to have them in my room.

My Duvet

It makes me feel warm and comfortable I hear someone’s TV. I hear my friend talking to me in the evenings from his room. I smell fresh bedding on a Friday. I see the TV. I touch the soft duvet I feel fine.

The sofa

I have sat on this sofa, but usually this sofa is for staff (Researcher note - Staff phone is charging)

Outside the Window

I like the view, This is the view from the kitchen

Fruit

I like the smell of fruit, There is always fruit in the house

This is my room. When I get out my room I was feeling dizzy. I had a fit. The staff came to my room, they were looking after me.

My scarf and my teddy. My mum gave me the scarf. The staff gave me the teddy for my birthday. She is called Penny. I give her a cuddle. She stays in my room.

This is my CD. My favourite songs are Turn Around Bright Eyes, Dancing Queen, Brown Girls in the Ring, By the Rivers of Babylon. The CD is not working.

That’s my friends and the staff in my house. That’s my friend Sally (staff). Sally was looking after me. I miss Gloria, I was crying in here. Anya is left, Cleo is left, Sally is left, that’s why I was crying.

I call my mum, my brother, my sister and my dad. My mum’s number is *******. That’s my mum’s number. My mum lives at home with my sister. On a Friday and on a Saturday and on a Sunday I want my mummy and my sister to come to my house to take me home.

G loves his bath. He likes to move his legs and splash and feel the water.

Kitchen table. G doesn’t really like sitting here with everyone else. He will want to go and sit in the quiet room and they serve his food there. G likes his space. He gets on with the other residents, he will look at them and smile at them, but he doesn’t want to sit there with them. He likes to interact more with staff.

We call it the quiet room, G likes to sit here and watch TV by himself, he likes to be by himself. Gary likes comedy. One time I was in his room and Mr Bean came on and he was laughing. I want to buy him some videos so he can watch Mr Bean in the quiet room. I would like some quiet lights for him in there for him.

G has a girlfriend at the day centre. Bernie (one of the staff) will give one of the flowers from the garden to give to his girlfriend and G will laugh and laugh!

They went on holiday and they bought the teddy for him. He doesn’t like teddy bears, he looks at it, but doesn’t want to hold it but it is a souvenir from his holiday so he likes to keep it in his room. If you want to take it out he will say no! I want to take out his shoes but he says no, even though he doesn’t wear them, because some of them are bought by his sister.

This is the corridor in M’s flat. I think it looks institutional. I think M would like it with better lighting and more pictures.

There are things here I would like to change for M. He really loves taking a bath, but the pipe came out and then the plumber could not find a part, I think this was because of COVID. M could not take a bath for a year. It is fixed for now, fingers crossed.

I think M would like to change the Spice Girls poster. It has been there a long time. I think he needs a new picture – maybe an elephant spurting water!

M watches TV after breakfast, between 4 and 5 when he comes back from the day centre and after dinner

This shows the furniture in the garden and the state of the garden. M likes to sit outside in the garden. The rocking seat broke and we could not find a way to replace it. I would like to give more attention to the garden, plant more flowers in the spring, get a new grass cutter.

M hears the blender is on. M smells the food cooking. M sees the staff doing the cooking – he likes to watch people cooking M tastes his food. Staff have to use the blender because otherwise he can’t swallow. Staff blend each kind of food separately so that M he knows what kind of food he is getting. He likes rice, chicken – spicy but not too peppery - and dessert, pudding. He feels if the food is not too hot or cold. He won’t eat if the food if the heat is not right for him or if the spicing or sweetness is not what he likes.

This is where I used to live. Jamie's coat is in the photo. I am wearing a suit because it was for a funeral for someone who lived there. It was a good friend, at the time it was a sad feeling. I can’t remember much it was a long time ago. I’m not very good at talking to people that I don’t know.

Linked words: A block of flats with a chimney, some other flats, a gate where I go out into the road. There are other flats in the estate but I don’t know the people who live there.

When: In the afternoon Where: My living room Who? Just me What: TV, clock, table, chair, DVD, sofa, weighing scales, lamp How: I found the furniture in the room when I moved in Why? This is the way I like to live

I hear: birds, dogs barking, traffic I smell: trees I see: Is it a church? Houses, trees, foxes sitting about, squirrels, birds I taste: I touch: the railings feel cold I feel: alright, excellent!

What can I see here: 6 deers What is happening here: The deers are in the park, it goes on for miles How does this relate to your life: I usually go by myself to the park. I like to go for a stroll Why does this happen: I would like some company sometimes What can we do about it: I have not told staff about things I want to change

Leading out to the window

High Road The Church The wall Shops nearby Relaxed, chilled Close the curtains sometimes to look after my eyes

Shampoos

What can we see here? Shampoos and creams. Shampoos in front and foot palm stone/foot spa. All of it belongs to ME. What is happening here: Every Monday I have to have my hair washed with support How does this relate to your life? Very good, I buy them for my hair Why does this happen? Shower downstairs, I call someone to help me

Crack in the wall

When? This happened quite a while ago Where? In my bedroom Who? No one did it, it just stays there. Just a crack, you get used to it What? My room changed. Is it getting fixed? It is upsetting Why? Why am I waiting for it to be fixed? It is taking a while to fix it. It is frustrating, I want this to change

The front door

I hear: Knock, knock! Someone’s at the door. They leave deliveries outside, the staff bring them in I smell: Roses, yellow roses. When I sweep I smell dust I see: People come in, deliveries are left outside. Windows stand out, because I look out of them to see who is there I taste: Dust and feel dust in my eyes I feel: It doesn’t work, go round the back way. Yes! It's not me being nosey. If someone comes to see someone I go to my room and I don’t be nosey.

Conservatory

When? You can visit anytime, but you have to call and arrange before you come Where? The middle chair is my favourite place to sit Who? Ellie and Sara visit What? People come and visit. They come in round the back way, they do a lateral flow test Why? Because people meet there

Feeling at Home

King’s College London
57 Waterloo Road
London
SE1 8WA

Contact

0207 848 3636
deborah.chinn@kcl.ac.uk

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Esther Springett

I am an advocate for my sister who has a learning disability and has lived in residential group homes. I am interested in how we make inclusive spaces which lead to greater visibility for people with complex support needs in social, civic and cultural life. I am a co-director of one of Feeling at Home’s project partners Quiet Down There who are developing the Feeling at Home photovoice exhibition, which opens in July 2022 in, Brighton. Quiet Down There specialises in amplifying the everyday and believe that culture is everywhere and everyone creates culture in their own way. They create and support environments where individuals, artists and communities can articulate and develop their own culture – making the invisible visible.

Dr Tony Levitan

I have worked in the NHS as a psychologist for nearly 10 years. My work has mainly been with adults and children with learning disabilities, helping people have a good quality of life.

Over the years I have visited people in their homes where people have staff support. This has made me think about how to help people feel more at home where they live. I am really interested in how people with learning disabilities can be more involved in health and social care services. In my clinical role, I have worked alongside people with learning disabilities to co-facilitate groups to support people with their mental health.

I am really excited to work on the Feeling at Home project and hope it will help people with learning disabilities and their supporters work together to make positive changes to their homes.

Dr Katy Brickley

I am the Research Assistant on the Feeling at Home project. I have a background in making and researching accessible information: I am interested in how it is produced and used.  My previous research looked at linguistic and communicative issues in return migration for asylum seekers and irregular migrants. I focused on barriers to people giving informed consent in this multilingual environment. I have produced training for advice staff working with refugees to understand what communication barriers might exist in their work and what strategies they can use to overcome them. In my spare time, I work as an Easy Read translator, translating complex information into Easy Read to make it accessible for people with learning disabilities.

Dr Andrew Power

I am an Associate Professor in Geography at the University of Southampton, and a co-researcher on the project. I am interested in research on personalisation and care in times of austerity. I have a track record of working inclusively alongside disabled people, using participatory methods including photovoice and arts-based activities. I have led recent research projects examining how people with learning disabilities are building meaningful lives in their communities with peer support and self-advocacy initiatives

Shalim Ali

I work as an Expert by Experience and Quality Checker for Choice Support – a charity that supports people with autism, learning disabilities, and mental health needs. I also have experience living in group homes with other people with learning disabilities. I’m really excited about bringing all this experience and my ideas to the project. I am a trustee for Heart ‘n Soul, a creative arts organisation for people with learning disabilities, and am a member of Learning Disability England Ideas Collective. I am really committed to supporting others with learning disabilities to have a voice.

Dr Deborah Chinn

For many years I worked as a clinical psychologist for the NHS in community teams for people with learning disabilities.  These days I work in a university helping train NHS staff and researchers. My own research is about the everyday lives of people with learning disabilities, and the services they get from the NHS and social services. I hope that my research can help improve these services, so that people with learning disabilities, their staff, and families can get the help and support that they deserve.  My job in the ‘Feeling at Home’ project is to lead the research team and make sure that we complete all the tasks to make sure the project is a success.